Patient resources
There are a range of materials available to help support your patients with Pompe disease who are receiving Pombiliti® and Opfolda®
Working Together
The simple guide to taking Pombiliti® and Opfolda®
This patient resource has been developed to help patients better understand their treatment with Pombiliti® and Opfolda® and help answer frequently asked questions. It covers why patients have been prescribed Pombiliti® and Opfolda®, how the treatment works and how they should take the medication.
Fasting Planner
This tool is intended to help patients work out when they must begin fasting, take their Opfolda® capsules and when to stop fasting.
Pombiliti® and Opfolda® patient animation
This animation is designed for patients, and covers how Pombiliti® and Opfolda® work.
Contact us if you would like to view this animation. It is also available for patients on the Pombiliti® and Opfolda® patient site; myPombilitiandOpfolda.co.uk.
Wayne’s Pompe Story
This video is designed for patients, and covers Wayne’s experiences with Pompe disease and receiving treatment with Pombiliti® and Opfolda®.
Contact us if you would like to view this animation. It is also available for patients on the Pombiliti® and Opfolda® patient site; myPombilitiandOpfolda.co.uk.
Resources for healthcare professionals
Guide to reconstitution and administration
This resource has been developed to help healthcare professionals with the dosing, reconstitution and administration of Pombiliti® and Opfolda®.
Guide to starting a patient on treatment
Treatment day checklist and frequently asked questions for healthcare professionals
This resource has been developed to support healthcare professionals with common questions around the reconstitution, dosing and administration of Pombiliti® and Opfolda® when initiating a patient on treatment.
